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The Williams Syndrome Association of Ireland (WSAI) was set up in the late 1980's as a support group for families of WS individuals in Ireland. The WSAI provides support to members through annual conferences, social gatherings and the issue of regular newsletters. It also works to make the medical, teaching and other professional groups more aware of the Williams Syndrome condition. This helps to ensure that children with WS are diagnosed at an early age and that they receive the early intervention that is so vital to them. The Williams Syndrome Association of Ireland was founded in 1987 with 2 family members and held it's first Annual General Meeting in September 1989. It became a Registered Charity in 1991 - Registered Charity Number CHY 9654. It is now run by a committee of 9 or 10 people that is elected each year at the Annual General Meeting. This committee consists of a Chairperson, Secretary and Treasurer as well as a number of committee members - usually all parents of WS children or adults. The committee meets 4 or 5 times each year. According to our constitution, the main aim of the WSAI is "to promote the general welfare of children suffering from Williams Syndrome and to provide practical help and support for children affected by Williams Syndrome". The WSAI has a medical advisory panel of 3
The Patron of the WSAI is The Right Hon. Desmond Guinness, Leixlip Castle, Co Kildare. For further information please contact: Williams Syndrome Association of Ireland, 13
Kilgarve Park, Ballinasloe, Co.
Galway. Ireland
Tel:
090 - 9643247 Fax:
090 - 9644638 email: wsai@eircom.net
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Last modified: November 17, 2007 |