Williams Syndrome Association of Ireland

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What is Williams Syndrome? 

Williams Syndrome is a genetic condition that occurs in approximately 1:20,000 births. It is caused by a deletion of some genetic material on chromosome number 7. Click on the link below for more information.

Click here for more Information

     

      Karen's Story 

"Angels at our Table"- a unique book of Williams Syndrome Stories written by WS families. 

"The Williams Family Album" - 4 Track CD of original music and lyrics composed by WS individuals.

Click here for details of both the book and CD. 

WSAI Annual Events:

 

Weekend Outings in March for member families
Music/Activity Camp in July/Aug for WS people worldwide
Seminar/AGM in November for parents, teachers, health professionals, etc. 
Would you like to help the Williams Syndrome Association of Ireland? 

See our Fundraising page for ideas on how you can assist the WSAI.

Donations: The WSAI is an "Approved Body under Section 848A Taxes Consolidation Act 1997". This means that the WSAI can obtain a tax refund from the Irish Revenue for any donations of €250 or greater received from an individual or a corporate donor. Donations are also tax deductible to Corporations. 

   

FEWS

The European Federation of Williams Syndrome Associations (FEWS) was formed in July 1999 at a meeting in London. The four founding member associations were Italy, Hungary, Ireland and UK. This organisation, which now has 8 member associations, has many worthwhile aims and aspirations. For further details click here.  

Musical Connection with Williams Syndrome!

Some researchers are intrigued by the musical abilities of some WS individuals. This musical ability does not occur in all WS people but it is very striking in those that do possess it. 

Newspaper articles have been written (Music Lights a Fire), television documentaries have been made and research projects have been carried out to learn more about this unusual ability. 

There is also an annual Music Camp run by the WS Association in the USA each summer. For details see the WS USA website.

The Williams Syndrome Foundation in the USA have set up a post secondary academy to take advantage of the musical ability in WS people. Details of the Berkshire Hills Music Academy can be found on their website. 

 

The Williams Syndrome Association of Ireland now runs a Music/Activity Camp each year in July or August in order to develop the musical potential of our WS people.

Ann Breen and her daughter, Karen, 

at the USA Music Camp in 1998 

(Photo by Jamie Francis, St Petersburg Times)

 

 

Berkshire Hills Music Academy, USA

 

Contact Information:

 

Telephone
090 9643247 (Intl: 00 353 90 9643247)
FAX
090 9644638 (Intl: 00 353 90 9644638)
Postal address
13 Kilgarve Park, Ballinasloe, Co Galway. Ireland
Electronic mail
General Information: wsai@eircom.net
Webmaster: wsai@eircom.net
 

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Last modified: November 17, 2007