A major fundraising/publicity walk is currently being organised in aid
of the Williams Syndrome Association of Ireland. The "Walk for
Williams" will take place from Belfast to Dublin from Wed, 10th April
to Sat, 13th April 2013. The walk will start from City Hall, Belfast at
9am on 10th and finish at the Mansion House, Dublin at 3pm on 13th
We would be very grateful for any support for this fundraising effort.
If you wish to take part please click here
for an application form. If you wish to sponsor one of the other
fundraisers, please use the DONATE NOW button to the left of the
screen and select the fundraiser you wish to sponsor.
THANK YOU FOR YOUR SUPPORT!
is Williams Syndrome?
Williams Syndrome is a genetic condition that occurs in approximately
1:20,000 births. It is caused by a deletion of some genetic material on
chromosome number 7. Click here for more
you like to help the Williams Syndrome Association of Ireland?
The Williams Syndrome Association of Ireland (WSAI)
was set up in the late 1980's as a support group for families of WS
individuals in Ireland. The WSAI provides support to members through annual
conferences, social gatherings and the issue of regular newsletters. It also
works to make the medical, teaching and other professional groups more aware of
the Williams Syndrome condition. This helps to ensure that children with WS are
diagnosed at an early age and that they receive the early intervention that is
so vital to them. Click here for more information on
The WSAI receives little or no state funding and is wholly dependent on
membership fees and
voluntary donations to fund it's work. Your support would be greatly
appreciated. The WSAI has recently registered with Sponsor.ie in order to
facilitate your donation. You can now make a donation
to the Williams Syndrome Association by clicking here.
NOTE: The WSAI is an "Approved Body under
Section 848A Taxes Consolidation Act 1997". This means that
the WSAI can obtain a tax refund from the Irish Revenue for any donations
of €250 or greater received from an individual or a corporate donor.
Donations are also tax deductible to Companies/Corporations.
See our Fundraising
page for ideas on how you can assist the WSAI.
at our Table"- a unique book of Williams Syndrome
Stories written by WS families. Second edition now available!
"The Williams Family Album"
- 4 Track CD of original music and lyrics composed by WS individuals.
for details of both the book and CD.
The European Federation of Williams Syndrome Associations (FEWS) was
formed in July 1999 at a meeting in London. The four founding
member associations were Italy, Hungary, Ireland and UK. This organisation,
which now has 8 member associations, has many worthwhile aims and aspirations. For further details click here.
|Musical Connection with
Some researchers are intrigued by the
musical abilities of some WS individuals.
This musical ability does not occur in all WS people but it is very
striking in those that do possess it.
Newspaper articles have been written
Lights a Fire), television documentaries have been made and research
projects have been carried out to learn more about this unusual ability.
There is also an annual Music Camp run by the WS Association in the USA each
summer. For details see the WS USA website.
The Williams Syndrome Foundation in the USA have set up a post secondary academy to take advantage of
the musical ability in WS
people. Details of the Berkshire
Hills Music Academy can be found on their website.
The Williams Syndrome Association of Ireland now runs a Music/Activity Camp each
year in July or August in order to develop the musical potential of our WS people.
Ann Breen and her daughter, Karen,
USA Music Camp
(Photo by Jamie
Francis, St Petersburg Times)
Berkshire Hills Music Academy,